The Lupus Rainbow Resources List

While this isn’t an exhaustive list, these are organizations and tools we’ve found helpful — either personally or through trusted community recommendations. Our hope is that these resources offer clarity, connection, and support as you navigate life with Lupus, NPSLE, Amyloidosis, or related conditions.

Disclaimer:

The Lupus Rainbow provides these resources for informational purposes only. We are not medical professionals and do not offer medical advice, diagnosis, or treatment. Always consult your healthcare provider before making any medical decisions or changes to your care plan.

If you know of an outstanding organization or tool we should include, we’d love to hear from you.

The Lupus Rainbow Resources List

Lupus Organizations

Whether you're newly diagnosed or navigating the complexities of Lupus long-term, these trusted organizations offer national-level support, education, research funding, and advocacy tools to help you manage your journey and connect with others who understand.

Lupus Foundation of America (LFA)

A national nonprofit offering education, advocacy, and patient support. LFA provides trusted guidance on diagnosis, daily management, and Lupus-related research.

LFA Website

Lupus Research Alliance (LRA)

The largest private funder of Lupus research in the world. LRA focuses on breakthrough science to improve treatments and move us closer to a cure.

LRA Website

Lupus and Allied Diseases Association (LADA)

A grassroots nonprofit focused on patient advocacy, education, and public policy. Over 99% of donations support direct program services.

LADA Website

Neuropsychiatric Lupus (NPSLE) Research & Info

NPSLE is still widely misunderstood — even in the medical world. These resources highlight the latest research on how Lupus affects the brain, helping you stay informed and empowered with real science behind the symptoms.

NPSLE Research (Dr. Carla Cuda, Northwestern Medicine)

A distinct resource offering cutting-edge research into Lupus’s impact on brain health — helping patients understand neuropsychiatric symptoms through science.

(Note: permission may be needed to link to this content)

LFA Website

PubMed Central – NPSLE Studies

An academic repository of peer-reviewed articles focused on Neuropsychiatric Lupus — helpful for deep research or to share with medical professionals.

NPSLE Website

Transplants

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The Transplant Journey

Let's Start Your New Change Today!

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